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Clinical Questions in Online Health Communities: The Case of "See your doctor" Threads

Published:28 February 2015Publication History

ABSTRACT

Online health communities are known to provide psychosocial support. However, concerns for misinformation being shared around clinical information persist. An existing practice addressing this concern includes monitoring and, as needed, discouraging asking clinical questions in the community. In this paper, I examine such practice where moderators redirected patients to see their health care providers instead of consulting the community. I observed that, contrary to common beliefs, community members provided constructive tips and persuaded the patients to see doctors rather than attempting to make a diagnosis or give medical advice. Moderators' posts on redirecting patients to see their providers were highly associated with no more follow up replies, potentially hindering active community dynamic. The findings showed what is previously thought of as a solution-quality control through moderation-might not be best and that the community, in coordination with moderators, can provide critical help in addressing clinical questions and building constructive information sharing community environment.

References

  1. Bäckstrand, K. Civic science for sustainability: reframing the role of experts, policy-makers and citizens in environmental governance. Global Environmental Politics 3, 4 (2003), 24--41.Google ScholarGoogle ScholarCross RefCross Ref
  2. Bacon, E.S., Condon, E.H., and Fernsler, J.I. Young widows' experience with an Internet self-help group. Journal of psychosocial nursing and mental health services 38, 7 (2000), 24.Google ScholarGoogle Scholar
  3. Berge, Z.L. and Collins, M.P. Perceptions of e-moderators about their roles and functions in moderating electronic mailing lists. Distance Education 21, 1 (2000), 81--100.Google ScholarGoogle ScholarCross RefCross Ref
  4. Camasso, M.J. and Camasso, A.E. Practitioner productivity and the product content of medical care in publicly supported health centers. Social science & medicine (1982) 38, 5 (1994), 733--48.Google ScholarGoogle Scholar
  5. Campbell, H., Phaneuf, M., and Deane, K. Cancer peer support programs-do they work? Patient Educ Couns 55, 1 (2004), 3--15.Google ScholarGoogle ScholarCross RefCross Ref
  6. Cohen, S., Gottlieb, B., and Underwood, L. Social relationships and health. In S. Cohen, L. Underwood and B. Gottlieb, eds., Measuring and intervening in social support. New York: Oxford University Press, 2000, 3--25.Google ScholarGoogle ScholarCross RefCross Ref
  7. Dugdale, D.C., Epstein, R., and Pantilat, S.Z. Time and the patient-physician relationship. Journal of General Internal Medicine 14, S1 (1999), S34--S40.Google ScholarGoogle ScholarCross RefCross Ref
  8. Edwards, L.L., Reis, J.S., and Weber, K.M. Facilitators and Barriers to Discussing HIV Prevention With Adolescents: Perspectives of HIV-Infected Parents. American journal of public health 103, 8 (2013), 1468--1475.Google ScholarGoogle Scholar
  9. Eysenbach, G., Powell, J., Englesakis, M., Rizo, C., and Stern, A. Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions. BMJ (Clinical research ed.) 328, 7449 (2004), 1166.Google ScholarGoogle Scholar
  10. Fox, S. and Duggan, M. Health Online. Pew Internet & American Life Project, Jan 15, 2013. http://www.pewinternet.org/files/old-media/Files/Reports/PIP_HealthOnline.pdf. Accessed on December 10, 2013.Google ScholarGoogle Scholar
  11. Fox, S., Rainie, L., Horrigan, J., Lenhart, A., Spooner, T., and Burke M. The online health care revolution: how the Web helps Americans take better care of themselves. Nov 26, 2000. http://www.pewinternet.org/2000/11/26/the-online-health-care-revolution/. Accessed on December 10, 2014Google ScholarGoogle Scholar
  12. Frost, J. and Massagli, M. PatientsLikeMe the case for a data-centered patient community and how ALS patients use the community to inform treatment decisions and manage pulmonary health. Chron. Respir. Dis. 6, 4 (2009), 225--9.Google ScholarGoogle ScholarCross RefCross Ref
  13. Giese-Davis, J., Bliss-Isberg, C., Carson, K., et al. The effect of peer counseling on quality of life following diagnosis of breast carcinoma: An observational study. Psycho-Oncology 15, 11 (2006), 1014--1022.Google ScholarGoogle ScholarCross RefCross Ref
  14. Hartzler, A., McDonald, D., Pratt, W., Park, A., and Huh, J. Facilitating Mentoring in peer health communities through social matching: Detecting mentorship characteristics from community data. American Medical Informatics Association Extended Abstracts. (2012).Google ScholarGoogle Scholar
  15. Hartzler, A. and Pratt, W. Managing the Personal Side of Health: How Patient Expertise Differs from the Expertise of Clinicians. J Med Internet Res 13, 3 (2011), e62.Google ScholarGoogle ScholarCross RefCross Ref
  16. Heisler, M., Vijan, S., Makki, F., and Piette, J.D. Diabetes control with reciprocal peer support versus nurse care management: a randomized trial. Ann Intern Med 153, 8 (2010), 507--15.Google ScholarGoogle ScholarCross RefCross Ref
  17. Huh, J., Mcdonald, D.W., Hartzler, A., and Pratt, W. Patient Moderator Interaction in Online Health Communities. Proceedings of American Medical Informatics Association (2013), 627--636.Google ScholarGoogle Scholar
  18. Huh, J., Patel, R., and Pratt, W. Tackling Dilemmas in Supporting "The Whole Person" in Online Patient Communities. In Proceedings of the 2012 ACM annual conference on Human Factors in Computing Systems (CHI '12), ACM (2012), 923--926. Google ScholarGoogle ScholarDigital LibraryDigital Library
  19. Johnson, B.T. Effects of outcome-relevant involvement and prior information on persuasion. Journal of Experimental Social Psychology 30, 6 (1994), 556--579.Google ScholarGoogle ScholarCross RefCross Ref
  20. Johnson, G.J. and Ambrose, P.J. Neo-Tribes: The Power and Potential of Online Communities in Health Care. Communications of the ACM 49, 1 (2006), 107--113. Google ScholarGoogle ScholarDigital LibraryDigital Library
  21. Klasnja, P., Hartzler, A., Powell, C., and Pratt, W. Supporting cancer patients' unanchored health information management with mobile technology. AMIA Annual Symposium Proceedings, (2011), 732.Google ScholarGoogle Scholar
  22. Liao, Qinying, Yingxin Pan, Michelle X. Zhou, and Fei Ma. Chinese online communities: balancing managementcontrol and individual autonomy. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, pp. 2193--2202. ACM, 2010. Google ScholarGoogle ScholarDigital LibraryDigital Library
  23. Liess, A., Simon, W., Yutsis, M., et al. Detecting emotional expression in face-to-face and online breast cancer support groups. Journal of consulting and clinical psychology 76, 3 (2008), 517--23.Google ScholarGoogle Scholar
  24. Malik, S.H. and Coulson, N.S. A comparison of lurkers and posters within infertility online support groups. Computers, informatics, nursing : CIN 29, 10 (2011), 564--73.Google ScholarGoogle Scholar
  25. Maloney-Krichmar, D. and Preece, J. A multilevel analysis of sociability, usability, and community dynamics in an online health community. ACM Transactions on Computer-Human Interaction (TOCHI) 12, 2 (2005), 201--232. Google ScholarGoogle ScholarDigital LibraryDigital Library
  26. Mason, M. Sample Size and Saturation in PhD Studies Using Qualitative Interviews. Forum Qualitative Sozialforschung / Forum: Qualitative Social Research 11, 3 (2010).Google ScholarGoogle Scholar
  27. Namkoong, K., Dubenske, L.L., Shaw, B.R., et al. Creating a Bond Between Caregivers Online: Effect on Caregivers' Coping Strategies. Journal of health communication, (2011) 17, 2 (2012): 125--140.Google ScholarGoogle Scholar
  28. Orizio, G., Schulz, P., Gasparotti, C., Caimi, L., and Gelatti, U. The world of e-patients: A content analysis of online social networks focusing on diseases. Telemedicine journal and e-health: the official journal of the American Telemedicine Association 16, 10 (2010), 1060--6.Google ScholarGoogle Scholar
  29. Petty, R.E., Cacioppo, J.T., and Goldman, R. Personal involvement as a determinant of argument-based persuasion. Journal of personality and social psychology 41, 5 (1981), 847.Google ScholarGoogle Scholar
  30. Pourmand, A. and Sikka, N. Online health information impacts patients' decisions to seek emergency department care. The western journal of emergency medicine 12, 2 (2011), 174--7.Google ScholarGoogle Scholar
  31. Resnick, P.J., Janney, A.W., Buis, L.R., and Richardson, C.R. Adding an online community to an internet-mediated walking program. Part 2: strategies for encouraging community participation. Journal of medical Internet research 12, 4 (2010), e72.Google ScholarGoogle Scholar
  32. Roberts, L., Salem, D., Rappaport, J., Toro, P., Luke, D., and Seidman, E. Giving and receiving help: Interpersonal transactions in mutual-help meetings and psychosocial adjustment of members. Am J Community Psychol 27, 6 (1999), 841--68.Google ScholarGoogle ScholarCross RefCross Ref
  33. Setoyama, Y., Yamazaki, Y., and Namayama, K. Benefits of peer support in online Japanese breast cancer communities: differences between lurkers and posters. Journal of medical Internet research 13, 4 (2011), e122.Google ScholarGoogle Scholar
  34. Smithson, J., Sharkey, S., Hewis, E., et al. Problem presentation and responses on an online forum for young people who self-harm. Discourse Studies 13, 4 (2011), 487--501.Google ScholarGoogle ScholarCross RefCross Ref
  35. Strauss, A.L. and Corbin, J. Basics of qualitative research: Grounded theory procedures and techniques. Sage, Newbury Park, CA, 1990.Google ScholarGoogle Scholar
  36. Vlahovic, T.A., Wang, Y.-C., Kraut, R.E., and Levine, J.M. Support matching and satisfaction in an online breast cancer support community. Proceedings of the 32nd annual ACM conference on Human factors in computing systems - CHI '14, ACM Press (2014), 1625--1634. Google ScholarGoogle ScholarDigital LibraryDigital Library
  37. Walsh, P. The Web and the unassailable voice. Archives and Museum Informatics 11, 2 (1997), 77--85.Google ScholarGoogle ScholarCross RefCross Ref
  38. Wang, Y.-C., Kraut, R.E., and Levine, J.M. To Stay or Leave? The Relationship of Emotional and Informational Support to Commitment in Online Health Support Groups. CSCW, (2012), 833--842. Google ScholarGoogle ScholarDigital LibraryDigital Library
  39. Zibit, M. What online facilitators say is difficult-experiences from Mathemagica online professional development. World Conference on E-Learning in Corporate, Government, Healthcare, and Higher Education, (2003), 843--844.Google ScholarGoogle Scholar
  40. dLife forum guidelines. http://www.dlife.com/policy/forum_guidelines.Google ScholarGoogle Scholar
  41. diabeticconnect.com terms of use. http://www.diabeticconnect.com/terms-of-use#disclaimer.Google ScholarGoogle Scholar
  42. webmd policies. http://www.webmd.com/about-webmd-policies/additional-info?ss=ftr.Google ScholarGoogle Scholar

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      • Published in

        cover image ACM Conferences
        CSCW '15: Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing
        February 2015
        1956 pages
        ISBN:9781450329224
        DOI:10.1145/2675133

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        Publication History

        • Published: 28 February 2015

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