ABSTRACT
We present the development of a socially acceptable cueing device for drooling in Parkinson's disease (PD). Sialorrhea, or drooling, is a significant problem associated with PD and has a strong negative emotional impact on those who experience it. Previous studies have shown the potential for managing drooling by using a cueing device. However, the devices used in these studies were deemed unacceptable by their users due to factors such as hearing impairment and social embarrassment. We conducted exploratory scoping work and high fidelity iterative prototyping with people with PD to get their input on the design of a cueing aid and this has given us an insight into challenges that confront users with PD and limit device usability and acceptability. The key finding from working with people with PD was the need for the device to be socially acceptable.
- Brown, R., Ditner, A., Findley, L. and Wessely, S.C. (2005). The Parkinson fatigue scale. Parkinsonism & Related disorders, 11, (1), 49--55.Google Scholar
- Chou, K. L., Evatt, M., Hinson, V. and Kompoliti, K. (2007). Sialorrhea in Parkinson's disease: A review. Movement Disorders, 22, (16), 2306--2313.Google ScholarCross Ref
- Edwards, L., Pfeifer, E., Quigley, E., Hofman, R. and Balluff, M. (1991). Gastrointestinal symptoms in Parkinson's disease. Movement Disorders, 6, 151--156.Google ScholarCross Ref
- Eisma, R., Dickinson, A., Goodman, J., Syme, A., Tiwari L. and Newell, A. (2004). Early user involvement in the development of information technology-related products for older people. Universal Access in the Information Society, 3, 131--140. Google ScholarDigital Library
- High Quality Care for all: NHS Next Stage Review final report. (2008). Retrieved October 5, 2009 from http://www.dh.gov.uk/en/publicationsandstatistics/publications/publicationspolicyandguidance/DH_085825.Google Scholar
- Hyson, C.H., Johnson A.M., Jog, M.S. (2002). Sublingual atropine for sialorrhea secondary to Parkinsonism: A pilot study. Movement Disorders, 17, (6), 1318--1320.Google ScholarCross Ref
- Marks, L., Turner, K., O'Sullivan, J., Deighton, B. and Lees, A. (2001). Drooling in Parkinson's disease: A novel speech and language therapy intervention. International Journal of Language and Communication Disorders, 36, 282--287.Google ScholarCross Ref
- Marron, A. (2004). Use of a metronome brooch reminder to improve drooling problems in patients with Parkinsonism. Retrieved 19/05/2009, from http://www.mepltd.co.uk/pdf/pd2004confreport.pd.Google Scholar
- Nobrega, A.C., Rodrigues, B., Torres, A, Scarpel, R., Neves, C. and Melo, A. (2008). Is drooling secondary to a swallowing disorder in patients with Parkinson's disease? Parkinsonism and Related Disorders, 14, 243--245.Google ScholarCross Ref
- Norman, D. A., (2002). Emotion & design: Attractive things work better. Interactions: new visions of human-computer interaction, 9 (4), 36--42. Google ScholarDigital Library
- Parkinson's Disease Society. Retrieved 25/03/2010, from http://www.parkinsons.org.uk/.Google Scholar
Index Terms
- Cueing for drooling in Parkinson's disease
Recommendations
Challenges of Parkinson's Disease: User Experiences with STOP
MobileHCI '19: Proceedings of the 21st International Conference on Human-Computer Interaction with Mobile Devices and ServicesParkinson's disease (PD) is the second most common neurodegenerative disorder, impacting an estimated seven to ten million people worldwide. Measuring the symptoms and progress of the disease, and medication effectiveness is currently performed using ...
Mobile-based Monitoring of Parkinson's Disease
MUM '18: Proceedings of the 17th International Conference on Mobile and Ubiquitous MultimediaParkinson's disease (PD) is the second most common neurodegenerative disorder, impacting an estimated seven to ten million people worldwide. It is commonly accepted that improving medication adherence alleviates symptoms and maintains motor ...
A review of assistive technologies for people with Parkinson's disease
Smart Environments: Technology to Support HealthcareThe population is aging and with this, the incidence of age related diseases such as Alzheimer's disease (AD) and Parkinson's disease (PD) are increasing. Assistive Technology (AT) is viewed as one of the possible solutions which can be used to meet the ...
Comments