Tira Cohene
ABSTRACT
In this paper we present a design project involving primary end users who have declining cognitive abilities such as memory, communication, and problem solving. We are designing interactive multimedia with personalized life stories for individuals with Alzheimer's disease. We conducted a case study to discover and address the design challenges for this project. A particular challenge is a limited ability to communicate with the primary end users. In this paper, we present design methods that take this challenge into consideration. Our goal is to contribute insight into designing for users with cognitive disabilities, and to present methodologies that are useful for designers who have a limited ability to interact or communicate with end users.
- The Alzheimer's Association. http://www.alz.orgGoogle Scholar
- The Baycrest Centre for Geriatric Care. http://www.baycrest.org/reports/bulletin_aug2003.pdfGoogle Scholar
- Beyer, H. and Holtzblatt, K. Contextual Design: Defining Customer-Centered Systems. Morgan Kaufmann, San Francisco, CA, 1998. Google ScholarDigital Library
- Czaja S.J., Rubert, M. Telecommunications technology as an aid to family caregivers of persons with dementia. Psychosomatic Medicine, 64, (2002), 469--476.Google ScholarCross Ref
- Fischer, G., & Sullivan, J.F. Human-centered public transportation systems for persons with cognitive disabilities - challenges and insights for participatory design. PDC, (2002), 194--198.Google Scholar
- Gaver, W., Dunne, T., and Pacenti, E. Cultural probes. Interactions, ACM Press, (1999), 21--29. Google ScholarDigital Library
- Gowans, G., Campbell, J., Alm, N. Astell, A., Ellis, M., & Dye, R. Designing a multimedia conversation aid for reminiscence therapy in dementia care environments, Proc. CHI 2004, ACM Press, (2004), 825--836 Google ScholarDigital Library
- Hickey, A., & Davis, A., Elicitation technique selection: how do experts do it? Proc., RE 2003, IEEE Computer Society Press, (2003), 169--178. Google ScholarDigital Library
- Hughes, J.A., Sommerville, I., & Randall, D. Designing with ethnography: making work visible. Interacting with Computers, 5, 2 (1993), 239--253.Google ScholarCross Ref
- Jokinen P., Lappalainen M., Meriläinen P., & Pelkonen M. Ethical issues in ethnographic nursing research with children and elderly people. Scandinavian Journal of Caring Sciences, 16, 2 (2002), 165--170(6)Google ScholarCross Ref
- Kasl-Godley, J., & Gatz, M. Psychosocial interventions for individuals with dementia: an integration of theory, therapy, and a clinical understanding of dementia. Clinical Psychology Review 20,6, (2000), 755--782.Google ScholarCross Ref
- Kensing, F., & Blomberg, J. Participatory design: issues and concerns. Computer Supported Cooperative Work, (1998), 167--185. Google ScholarDigital Library
- LoPresti, E.F., Mihailidis, A., & Kirsch, N. Assistive technology for cognitive rehabilitation: state of the art. Neuropsychological Rehabilitation, 14, (2004), 5--39.Google ScholarCross Ref
- Marziali, E. Effects of personalized video-taped retrospective life histories on persons with Alzheimer's. (2002). Unpublished report.Google Scholar
- Morris, M., Lundell, J., & Dishman, E. Catalyzing social interaction with ubiquitous computing: a needs asssessment of elders coping with cognitive decline. Proc. CHI 2004, ACM Press (2004), 1151--1154. Google ScholarDigital Library
- Spector A, Thorgrimsen L, Woods B, et al. Efficacy of an evidence-based cognitive stimulation therapy programme for people with dementia: randomised controlled trial. Br J Psychiatry (2003) 183, 248--54.Google Scholar
- Suchman, Lucy A. Plans and Situated Actions: The Problem of Human-Machine Communication. Cambridge University Press, Cambridge, 1987. Google ScholarDigital Library
- Wilson, R.S. et al. Participation in cognitively stimulating activities and risk of incident Alzheimer disease. JAMA. (2002), 287:742--748.Google Scholar
- Woods, R.T. Discovering the person with Alzheimer's disease: cognitive, emotional and behavioural aspects. Aging & Mental Health, (2001), S7--S16.Google ScholarCross Ref
Index Terms
- Designing interactive life story multimedia for a family affected by alzheimer's disease: a case study
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