Zusammenfassung
Die Früherkennung von Demenzerkrankungen bei Menschen mit einer geistigen Behinderung ist von großer Bedeutung für eine angemessene Begleitung dieser Menschen. Im Unterschied zur Allgemeinbevölkerung sind für diese Personengruppe sowohl andere Instrumente als auch andere Erhebungsmethoden erforderlich. Seit ca. 20 Jahren beschäftigen sich Forscher weltweit mit der Entwicklung geeignetes Screeninginstrumente. Die Instrumente lassen sich in zwei Gruppen einteilen: Fremdbefragungen und direkte Einschätzungen kognitiver Fähigkeiten. In dem Beitrag wird dargestellt, wie den Herausforderungen der Demenzfrüherkennung begegnet wird und welche Strategien für die Früherkennung empfohlen werden. Neu entwickelte ausgewählte Instrumente, die sich für die Früherkennung eignen, werden vorgestellt.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Similar content being viewed by others
Literatur
Albert, M., & Cohen, C. (1992). The test for severe impairment: An instrument for the assessment of patients with severe cognitive dysfunction. Journal of American Geriatrics Society, 40, 449–453.
American Psychiatric Association. (1994). Diagnostic and statistical manual of mental disorders, (4. Aufl.). Washington: American Psychiatric Association.
Aylward, E. H., Burt, D. B., Thorpe, L. U., Lai, F., & Dalton, A. (1997). Diagnosis of dementia in individuals with intellectual disability. Journal of Intellectual Disability Research, 41, 152–164.
Ball, S. L., Holland, A. J., Huppert, F. A., Treppner, P., Watson, P., & Hon, J. (2004). The modified CAMDEX informant interview is a valid and reliable tool for use in the diagnosis of dementia in adults with down's syndrome. Journal of Intellectual Disability Research, 48, 611–620.
Burt, D. B., & Aylward, E. H. (2000). Test battery for the diagnosis of dementia in individuals with intellectual disability. Journal of Intellectual Disabilities, 44, 175–180.
Burt, D. B., Primeaux-Hart, K., Loveland, K. A., Cleveland, L. A., Lewis, K. R., Lesser, J., & Pearson, P. L. (2005). Tests and medical conditions associated with dementia diagnosis. Journal of Policy and Practice in Intellectual Disabilities, 2, 47–56.
Cosgrave, M. P., McCarron, M., Anderson, M., Tyrrell, J., Gill, M., & Lawlor, B. A. (1998). Cognitive decline in down syndrome: A validity/reliability study of the test for severe impairment. American Journal on Mental Retardation, 103, 193–197.
De Vreese, L. P., Mantesso, U., Scarazzini, M., Menegatti, C., & Gomiero, T. (2007). A reliability study of the Italian version of the dementia questionnaire for persons with intellectual disabilities (DMR). Psiogeriatria, 3, 19–27.
De Vreese, L. P., Mantesso, U., De Bastiani, E., Marangoni, A., & Gomiero, T. (2011). Psychometric evaluation of the Italian version of the AADS questionnaire: A caregiver-rated tool for the assessment of behavioral deficits and excesses in persons with intellectual disabilities and dementia. International Psychogeriatrics, 23, 1124–1132.
Deb, S. (2007). Dementia screening questionnaire for individuals with intellectual disabilities (DSQIID). University of Birmingham: Division of Neuroscience. http://www.birmingham.ac.uk/documents/collegeles/psych/ld/lddementiascreeningquestionnaire.pdf. Zugegriffen: 15. Okt. 2011.
Deb, S., & Braganza, J. (1999). Comparison of rating scales for the diagnosis of dementia in adults with down's syndrome. Journal of Intellectual Disability Research, 43, 400–407.
Deb, S., Hare, M., Prior, L., & Bhaumik S. (2007a). Dementia screening questionnaire for individuals with intellectual disabilities. The British Journal of Psychiatry, 190, 440–444.
Deb, S., Hare, M., & Prior L. (2007b). Symptoms of dementia among adults with down's syndrome: A qualitative study. Journal of Intellectual Disability Research, 51, 726–739.
Esralew, L., Janicki, M. P., DiSipio, M., Jokinen, N., Keller, S. M., & Members of the National Task Group Section on Early Detection and Screening. (2013). National task group early detection screen for dementia: Manual. http://aadmd.org/sites/default/files/NTGEDSDmanual-bangor%20version-e.pdf. Zugegriffen: 04. April. 2015.
Evenhuis, H. M. (1992). Evaluation of a screening instrument for dementia in aging mentally retarded persons. Journal of Intellectual Disability Research, 36, 337–347.
Evenhuis, H. M., Kengen, M. M. F., & Eurlings, H. A. L. (2006). Screening instrument for diagnosis of dementia in people with learning disabilities. Manual. Amsterdam: Pearson.
Gedye, A. (1995). Manual for the dementia scale for down syndrome (DSDS). Vancouver: Gedye Research and Consulting.
Grunewald, K., Kuhn, C., Meyer, T., & Voss, A. (2013). Demenz bei Menschen mit geistiger Behinderung. Eine empirische Bestandsaufnahme. Bad Heilbrunn: Julius Klinkhardt Verlag.
Gusset-Bährer, S. (2012). Demenz bei geistiger Behinderung. München: Ernst Reinhardt Verlag.
Havemann, M., & Stöppler, R. (2010). Altern mit geistiger Behinderung. Grundlagen und Perspektiven für Begleitung, Bildung und Rehabilitation (2. Aufl.). Stuttgart: Kohlhammer.
Huxley A., Prasher V. P., & Haque M. S. (2000). The dementia scale for down's syndrome. Journal of Intellectual Disabilities Research, 44, 697–698.
Jozsvai, E., Kartakis, P., & Gedye, A. (2009). Dementia scale for down syndrome. In V. P. Prasher (Hrsg.), Neuropsychological assessments of dementia in down syndrome and intellectual disabilities (S. 53–66). London: Springer.
Kalsy, S., McQuillan, S., Oliver, C., Hall, S., & Oyebode, J. (2002). Assessment for adults with developmental disabilities (AADS). Birmingham: University of Birmingham & South Birmingham Primary Care NHS Trust.
Kay, D. W. K., Tyrer, S. P., Margallo-Lana, M. L., Moore, P. B., Fletcher, R., Berney, T. P., & Vithayathil, E. (2003). Preliminary evaluation of a scale to assess cognitive function in adults with Down's syndrome: The Prudhoe cognitive function test. Journal of Intellectual Disability Research, 47, 155–168.
Kranich, M. (2006). Altgewordene Menschen mit geistiger Behinderung: Zum Verhältnis von geistiger Behinderung und Demenz. http://www.demenz-service-nrw.de/files/material_der_dsz/owl/Artikel%20Geistige%20Behinderung%20und%20Demenz%20Kranich.pdf. Zugegriffen: 15. Juni 2011.
Kuske, B., & Müller, S. V. (2013). Die Diagnose Demenz bei geistig behinderten Menschen – State of the Art. Klinische Neurophysiologie, 44, 86.
Kuske, B., Wolff, C., Gövert, U., & Müller, S. V. (under review). Early detection of dementia in people with an intellectual disability – A German pilot study. Journal of Intellectual Disability Research.
Li, R. S. Y., Kwok, H. W. M, Deb, S., Chui, E. M. C., Chan, L. K., & Leung, D. P. K. (2015). Validation of the chinese version of the dementia screening questionnaire for individuals with intellectual disabilities (DSQIID-CV). Journal of Intellectual Disability Research, 59, 385–395.
Lindmeier, B., & Lubitz, H. (2011). Alternde Menschen mit geistiger Behinderung und Demenz-Grundlagen und Handlungsansätze. Teilhabe, 50, 155–160.
Millichap, D., Oliver, C., McQuillan, S., Kalsy, S., Lloyd, V., & Hall, S. (2003). Descriptive functional analysis of behavioural excesses shown by adults with down syndrome and dementia. International Journal of Geriatric Psychiatry, 18, 844–854.
Moran, J. A., Rafii, M. S., Seth, M. K., Singh, S. M., Singh, B. K., & Janicki, M. P. (2013). The national task group on intellectual disabilities and dementia practices consensus recommendations for the evaluation and management of dementia in adults with intellectual disabilities. Mayo Foundation for Medical Education and Research, 88, 831–840.
Moss S., & Patel, P. (1997). Dementia in older people with intellectual disability: symptoms of physical and mental illness and levels of adaptive behaviour. Journal of Intellectual Disability Research, 41, 60–69.
Müller, S. V., & Wolff, C. (2012). Demenzdiagnostik bei Menschen mit geistiger Behinderung. Ergebnisse einer Befragung. Teilhabe, 51, 154–160.
Müller, S. V., Kuske, B., Wolff, C., Gövert, U., & Specht, D. (in Vorbereitung). Der Wolfenbütteler Demenztest für Menschen mit Intelligenzminderung (WDTIM). Göttingen: Hogrefe.
Oliver, C. (1999). Perspectives on assessment and evaluation. In M. P. Janicki, & A. J. Dalton (Hrsg.), Dementia, aging, and intellectual disabilities: A handbook (S. 123–140). New York: Routledge Taylor & Franscis Group.
Oliver, C., & Kalsy, S. (2005). The assessment of dementia in people with intellectual disabilities: Context, strategy and methods. In J. Hogg & A. Langa (Hrsg.), Assessing adults with intellectual disabilities. A service providers' guide. (S. 98–107). Malden: Blackwell Publishing.
Oliver, C., Kalsy, S., Mc Quillan, S., & Hall, S. (2011). Behavioural excesses and deficits associated with dementia in adults who have down syndrome. Journal of Applied Research in Intellectual Disabilities, 24, 208–216.
Rimmer, J., & Hsieh, K. (2012). Longitudinal health and intellectual disability study (LHIDS) on obesity and health risk behaviors. http://www.rrtcadd.org/resources/Research/State-of-the-Science/Longitudinal-Health.doc. Zugegriffen: 04. April. 2015.
Roth, M., Huppert, F., Tym, E., & Mountjoy, C. (1988). CAMDEX: The cambridge examination for mental disorders of the elderly. Cambridge: Cambridge University Press.
Schanze, C. (2012). Klinische Symptomatik demenzieller Erkrankungen bei Menschen mit Intelligenzminderung. Sonderheft der Zeitschrift Medizin für Menschen mit geistiger oder mehrfacher Behinderung, 8 (Suppl. 1), 13–24.
Strydom, A., & Hassiotis, A. (2003). Diagnostic instruments for dementia in older people with intellectual disability in clinical practice. Aging & Mental Health, 7, 431–437.
U.S. Department of Health and Human Services. (2014). National plan to address Alzheimer's disease 2014 (Update). http://aspe.hhs.gov/daltcp/napa/NatlPlan2014.pdf. Zugegriffen: 04. April 2015.
Whitwham, S., McBrien, J., & Broom, W. (2010). Should we refer for a dementia assessment? A checklist to help know when to be concerned about dementia in adults with down syndrome and other intellectual disabilities. British Journal of Learning Disabilities, 39, 17–21.
Witts, P., & Elders, S. (1998). The „Severe Impairment Battery“: Assessing cognitive ability in adults with Down syndrome. British Journal of Clinical Psychology, 37, 213–216.
World Health Organisation. (2010). Internationale Klassifikation psychischer Störungen. ICD-10, Klinisch-diagnostische Leitlinien (7. Aufl.). Bern: Hans Huber Verlag.
Zeilinger, E. L., Stiehl, K. A. M., & Weber, G. (2013a). A systematic review on assessment instruments for dementia in persons with intellectual disabilities. Research in Developmental Disabilities, 34, 3962–3977.
Zeilinger, E., Fritsch, A., Mayr, M., Henning, D., & Gärtner, C. (2013b). NTG – Early Detection Screen for Dementia (EDSD). Originalversion: National Task Group on Intellectual Disabilities and dementia Practices (2012). http://aadmd.org/sites/default/files/NTG-EDSD_deutsch-7‼/span>%2716%2713.pdf. Zugegriffen: 17. Okt. 2013.
Zeilinger, E., Gärtner, C., Janicki, M. P., Esralew, L., & Weber, G. (in Druck). Practical applications of the NTG-EDSD for screening adults with intellectual disabilities for dementia: A german language version feasibility study. Journal of Intellectual & Developmental Disability.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2016 Springer Fachmedien Wiesbaden
About this chapter
Cite this chapter
Kuske, B., Gövert, U., Wolff, C., Müller, S. (2016). Früherkennung von Demenzerkrankungen bei Menschen mit geistiger Behinderung mit psychometrischen Instrumenten. In: Müller, S., Gärtner, C. (eds) Lebensqualität im Alter. Gesundheit. Politik - Gesellschaft - Wirtschaft. Springer VS, Wiesbaden. https://doi.org/10.1007/978-3-658-09976-3_12
Download citation
DOI: https://doi.org/10.1007/978-3-658-09976-3_12
Published:
Publisher Name: Springer VS, Wiesbaden
Print ISBN: 978-3-658-09975-6
Online ISBN: 978-3-658-09976-3
eBook Packages: Social Science and Law (German Language)