Skip to main content
SpringerLink
Log in

Health Services Utilization by Community-Dwelling Dementia Patients and Their Family Caregivers

  • Chapter
  • First Online:
Health Care Utilization in Germany

  • 1404 Accesses

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Log in via an institution
Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 129.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 169.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 169.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Similar content being viewed by others

Notes

  1. 1.

    Care levels are composed according to § 15 as follows: Definite care dependent are in need for help at least once daily in two care areas and more than once a week for home help (Care Level 1); Strong care dependent (Care Level 2) are in need for help at least three times a day for different times in at least two care areas and more than once a week for home help; Very strong care dependent (Care Level 3) are in need for help around the clock (including at night) and more than once a week for home help;

    Schwerstpflegebedürftige (Pflegestufe III) haben einen Hilfebedarf rund um die Uhr (auch nachts) und sind mehrmals wöchentlich auf hauswirtschaftliche Hilfe angewiesen.

    Nach § 123 haben Versicherte ohne Pflegestufe aber mit erheblicher eingeschränkter Alltagskompetenz (entsprechend § 45a) je Monat einen Anspruch auf Pflegegeld nach § 37 in Höhe von 120 Euro oder Pflegesachleistungen nach § 36 in Höhe von bis zu 225 Euro.

References

  • Aguero-Torres H, von Strauss E, Viitanen M, Winblad B, Fratiglioni L (2001) Institutionalization in the elderly: the role of chronic diseases and dementia. Cross-sectional and longitudinal data from a population-based study. J Clin Epidemiol 54:795–801

    Article  PubMed  CAS  Google Scholar 

  • Andersen RM, Davidson PL (2001) Improving access to care in America: individual and contextual indicators. In: Andersen RM, Rice TH, Kominski GF (eds) Changing the U.S. health care system: key issues in health services, policy, and management. John Wiley & Sons Inc., San Francisco, pp 3–30

    Google Scholar 

  • Bower F, McCullough C, Pille B (2002) Synthesis of research findings regarding Alzheimer´s disease: part IV, education of family and staff caregivers. Online Knowl Synth Nurs 9:1–7

    Google Scholar 

  • Brodaty H, Thomson C, Thompson C, Fine M (2005) Why caregivers of people with dementia and memory loss don’t use services. Int J Geriatr Psychiatry 20:537–546

    Article  PubMed  Google Scholar 

  • Burks V, Lund D, Hill R (1991) Factors associated with attendance at caregiver support group meetings. Act Adapt Aging 15:93–108

    Article  Google Scholar 

  • Chan J (2007) Carers’ perspective on respite for persons with acquired brain injury. Int J Rehabil Res 30:137–146

    Article  PubMed  Google Scholar 

  • Chassagne P, Idrissi-Kassimy F, Rigal O (2008) Comorbidite et syndromes dementiels [Comorbidity and dementia]. Psychol Neuropsychiatr Vieil 6:43–48.

    PubMed  Google Scholar 

  • Chow T, Ross L, Fox P, Cummings J, Lin K-M (2000) Utilization of Alzheimer’s disease community resources by Asian-Americans in California. Int J Geriatr Psychiatry 15:838–847

    Article  PubMed  CAS  Google Scholar 

  • Colantonio A, Kositsky A, Cohen C, Vernich L (2001) What support do caregivers of elderly want? Results from the Canadian Study of Health and Aging. Can J Public Health 92:376–379

    PubMed  CAS  Google Scholar 

  • Cooke D, McNally L, Mulligan K, Harrison M, Newman S (2001) Psychosocial interventions for caregivers of people with dementia: a systematic review. Aging Ment Health 5:120–135

    Article  PubMed  CAS  Google Scholar 

  • dello Buono M, Busato R, Mazzetto M, Paccagnella B, Aleotti F, Zanetti O, Bianchetti A, Trabucchi M, de Leo D (1999) Community care for patients with Alzheimer’s disease and non-demented elderly people: use and satisfaction with services and unmet needs in family caregivers. Int J Geriatr Psychiatry 14:915–924

    Article  PubMed  CAS  Google Scholar 

  • Donath C, Bleich S, Gräßel E (2009a) Gerontopsychiatrische Tageskliniken—Prädiktoren der Inanspruchnahme und Qualitätserwartungen aus Sicht pflegender Angehöriger von Demenzpatienten. Psychiatr Prax 36:175–181

    Article  Google Scholar 

  • Donath C, Luttenberger K, Gräßel E (2009b) Pflegekurs—Prädiktoren der Inanspruchnahme und Qualitätserwartungen aus Sicht pflegender Angehöriger eines Demenzpatienten . Gesundheitswesen 71:291–292

    Article  CAS  Google Scholar 

  • Donath C, Winkler A, Gräßel E (2009c) Short-term residential care for dementia patients:predictors for utilization and expected quality from a family caregiver’s point of view. Int Psychogeriatr 21:703–710

    Article  Google Scholar 

  • Donath C, Gräßel E, Großfeld-Schmitz M, Lauterberg J, Wunder S, Marx P, Ruckdäschel S, Mehlig H, Holle R (2010) Effects of general practitioner training and family support services on the care of home-dwelling dementia patients—results of a controlled cluster-randomized study. BMC Health Serv Res 10:314

    Article  PubMed  Google Scholar 

  • Donath C, Winkler A, Graessel E, Luttenberger K (2011) Day care for dementia patients from a family caregiver’s point of view: a questionnaire study on expected quality and predictors of utilisation—Part II. BMC Health Serv Res 11:76

    Article  PubMed  Google Scholar 

  • Gallagher-Thompson D, Coon D (2007) Evidence-based psychological treatments for distress in family caregivers of older adults. Psychol Aging 22:37–51

    Article  PubMed  Google Scholar 

  • Goldsmith M (1996) Hearing the voice of people with dementia. Opportunities and obstacles. Jessica Kingsley, London

    Google Scholar 

  • Graessel E, Luttenberger K, Bleich S, Adabbo R, Donath C (2011) Home nursing and home help for dementia patients: predictors for utilization and expected quality from a family caregiver’s point of view. Arch Gerontol Geriatr 52:233–238

    Article  PubMed  Google Scholar 

  • Gräßel E (1997) Temporary institutional respite in dementia cases: who utilizes this form of respite care and what effect does it have? Int Psychogeriatr 9:437–448

    Article  Google Scholar 

  • Gräßel E (1998) Häusliche Pflege dementiell und nicht dementiell Erkrankter Teil I: Inanspruchnahme professioneller Pflegehilfe []. Z Gerontol Geriatr 31:52–56

    Article  PubMed  Google Scholar 

  • Gräßel E, Schirmer B (2006) Freiwillige Helferinnen und Helfer zur Entlastung der Angehörigen demenzkranker Menschen []. Z Gerontol Geriatr 39:217–226

    Article  PubMed  Google Scholar 

  • Gräßel E, Römer H, Donath C (2009) Betreuungsgruppen—Prädiktoren der Inanspruchnahme und Qualitätserwartungen aus Sicht pflegender Angehöriger eines Demenzkranken. Z Gerontol Geriatr 42:394–401

    Article  PubMed  Google Scholar 

  • Gräßel E, Luttenberger K, Römer H, Donath C (2010a) Ehrenamtlicher Betreuungsdienst bei Demenz—Prädiktoren der Inanspruchnahme und Qualitätserwartungen aus Sicht pflegender Angehöriger. Fortschr Neurol Psychiatr 78:536–541

    Article  Google Scholar 

  • Gräßel E, Luttenberger K, Trilling A, Donath C (2010b). Counselling for dementia caregivers—predictors for utilization and expected quality from a family caregiver’s point of view. Eur J Ageing 7:111–119

    Article  Google Scholar 

  • Gräßel E, Trilling A, Donath C, Luttenberger K (2010c) Support groups for dementia caregivers – Predictors for utilisation and expected quality from a family caregiver´s point of view: a questionnaire survey PART I*. BMC Health Serv Res 10:219

    Article  Google Scholar 

  • Grossfeld-Schmitz M, Donath C, Holle R, Lauterberg J, Ruckdäschel S, Mehlig H, Marx P, Wunder S, Gräßel E (2010) Counsellors contact dementia caregivers – predictors of utilisation in a longitudinal study. BMC Geriatr 10

    Google Scholar 

  • Holle R, Gräßel E, Ruckdaschel S, Wunder S, Mehlig H, Marx P, Pirk O, Butzlaff M, Kunz S, Lauterberg J (2009) Dementia care initiative in primary practice – study protocol of a cluster randomized trial on dementia management in a general practice setting. BMC Health Serv Res 9:91

    Article  PubMed  Google Scholar 

  • Jolley D, Benbow S, Grizzell M (2006) Memory clinics. Postgraduate Medical Journal 82:199–206

    Article  PubMed  CAS  Google Scholar 

  • Jost E, Voigt-Radloff S, Hüll M, Dykierek P, Schmidtke K (2006) Fördergruppe für Demenzpatienten und Beratungsgruppe für Angehörige. Zeitschrift für Gerontopsychologie & -psychiatrie 19:139–150

    Google Scholar 

  • Kosloski K, Montgomery R (1993) Perceptions of respite services as predictors of utilization. Res Aging 15:399–413

    Article  Google Scholar 

  • Krauß A (2006) Ehrenamtliche Hilfen zur Unterstützung pflegender Angehöriger demenziell erkrankter Menschen Engagementförderung und –qualifizierung.Fachhochschule Erfurt, Erfurt

    Google Scholar 

  • Lamura G, Mnich E, Wojszel B, Nolan M, Krevers B, Mestheneos L, Döhner H (2006) Erfahrungen von pflegenden Angehörigen älterer Menschen in Europa bei der Inanspruchnahme von Unterstützungsleistungen: Ausgewählte Ergebnisse des Projektes EUROFAMCARE. Z Gerontol Geriatr 39:429–442

    Article  PubMed  CAS  Google Scholar 

  • Luppa M, Luck T, Braehler E, Koenig HH, Riedel-Heller SG (2008). Prediction of institutionalisation in dementia. A systematic review. Dement Geriatr Cogn Disord 26:65–78

    Article  PubMed  Google Scholar 

  • Menn P, Holle R, Kunz S, Donath C, Lauterberg J, Leidl R, Marx P, Ruckdäschel S, Vollmar HC, Wunder S et al (2012) Dementia care in the general practice setting: a cluster randomized trial on the effectiveness and cost Impact of three management strategies. Value in Health 15:851–859

    Article  PubMed  Google Scholar 

  • Monahan D, Greene V, Coleman P (1992) Caregiver support groups: factors affecting use of service. Soc Work 37:254–260

    PubMed  CAS  Google Scholar 

  • Montoro-Rodriguez J, Kosloski K, Montgomery R (2003) Evaluating a practice-oriented service model to increase the use of respite services among minorities and rural caregivers. Gerontologist 43:916–924

    Article  PubMed  Google Scholar 

  • Philip I, Ghosh U (1992) Community care services: views of patients attending a geriatric day hospital. Health Bull 50:296–301

    Google Scholar 

  • Quentin W, Riedel-Heller SG, Luppa M, Rudolph A, Konig HH (2009) Cost-of-illness studies of dementia: a systematic review focusing on stage dependency of costs. Acta Psychiatr Scand 121:243–59

    Article  PubMed  Google Scholar 

  • Roelands M, Van Oost P, Depoorter A (2008) Service use in family caregivers of persons with dementia in Belgium: psychological and social factors. Health Soc Care Community 16:42–53

    Article  PubMed  Google Scholar 

  • Schunk M, Steinwachs K (2003) Strukturen und Veränderungen im multimodalen Behandlungskonzept der Gerontopsychiatrischen Tagesklinik des Klinikums am Europakanal Erlangen. Psychiatr Prax 30:203–206

    Article  PubMed  Google Scholar 

  • Schwarzkopf L, Menn P, Kunz S, Holle R, Lauterberg J, Marx P, Mehlig H, Wunder S, Leidl R, Donath C et al (2011) Costs of care for dementia patients in community setting: an analyses for mild and moderate disease stage. Value in Health 14:827–835

    Article  PubMed  Google Scholar 

  • Selwood A, Johnston K, Katona C, Lyketsos C, Livingston G (2007). Systematic review of the effect of psychological interventions on family caregivers of people with dementia. J Affect Disord 101:75–89

    Article  PubMed  CAS  Google Scholar 

  • Sozialgesetzbuch (SGB XI)— Soziale Pflegeversicherung, zuletzt geändert durch Art. 2c des Gesetzes vom 21.07.2012 [] (BGBl. I S. 1601)

    Google Scholar 

  • Sörensen S, Duberstein P, Gill D, Pinquart M (2006). Dementia care: mental health effects, intervention strategies, and clinical implications. Lancet Neurol 5:961–973

    Article  PubMed  Google Scholar 

  • Thorpe J, Widman LP, Wallin A, Beiswanger J, Blumenthal HT (1994) Comorbidity of other chronic age-dependent diseases in dementia. Aging (Milano) 6:159–66

    CAS  Google Scholar 

  • Toseland R, McCallion P, Gerber T, Dawson C, Gieryic S, Guilamo-Ramos V. (1999) Use of health and human services by community-residing people with dementia. Soc Work 44:535–548

    Article  PubMed  CAS  Google Scholar 

  • Toseland R, McCallion P, Gerber T, Banks S (2002) Predictors of health and human services use by persons with dementia and their family caregivers. Soc Sci Med 55:1255–1266

    Article  PubMed  Google Scholar 

  • van Exel J, Morée M, Koopmanschap M, Schreuder Goedheijt T, Brouwer W (2006) Respite care—an explorative study of demand and use in Dutch informal caregivers. Health Policy 78:194–208

    Article  PubMed  Google Scholar 

  • Woods B, Spector AE, Jones CA, Orrell M, Davies SP (2005) Reminiscence therapy for dementia. Cochrane Database Syst Rev:DC001120

    Google Scholar 

  • Zekry D, Herrmann FR, Grandjean R, Meynet MP, Michel JP, Gold G, Krause KH (2008) Demented versus non-demented very old inpatients: the same comorbidities but poorer functional and nutritional status. Age Ageing 37:83–89

    Article  PubMed  Google Scholar 

  • Zhu C, Sano M (2006) Economic consideration in the management of Alzheimer´s disease. Clin Interv Aging 1:143–154

    Article  PubMed  Google Scholar 

Download references

Author information

Authors and Affiliations

  1. Friedrich-Alexander-Universität Erlangen-Nürnberg, Clinic of Psychiatry and Psychotherapy, Center for Health Services Research in Medicine, Erlangen, Germany

    Carolin Donath, Gudrun Ulbrecht, Hannes Grau & Elmar Graessel

  2. Institute of Health Economics and Health Care Management, Helmholtz Zentrum München—German Research Center for Environmental Health (GmbH), Neuherberg, Germany

    Larissa Schwarzkopf, Petra Menn, Simone Kunz & Rolf Holle

Authors
  1. Carolin Donath
    View author publications

    You can also search for this author in PubMed Google Scholar

  2. Gudrun Ulbrecht
    View author publications

    You can also search for this author in PubMed Google Scholar

  3. Hannes Grau
    View author publications

    You can also search for this author in PubMed Google Scholar

  4. Elmar Graessel
    View author publications

    You can also search for this author in PubMed Google Scholar

  5. Larissa Schwarzkopf
    View author publications

    You can also search for this author in PubMed Google Scholar

  6. Petra Menn
    View author publications

    You can also search for this author in PubMed Google Scholar

  7. Simone Kunz
    View author publications

    You can also search for this author in PubMed Google Scholar

  8. Rolf Holle
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to Carolin Donath .

Editor information

Editors and Affiliations

  1. Department of Applied Social Sciences, Munich University of Applied Sciences, Munich, Germany

    Christian Janssen

  2. Institute of Social Medicine & Health Economics, Otto von Guericke University Magdeburg, City, Germany

    Enno Swart

  3. Ctr of Public Health & Health Care, Medical Psych. Unit, Hannover Medical School, Hannover, Germany

    Thomas von Lengerke

Rights and permissions

Reprints and permissions

Copyright information

© 2014 Springer Science+Business Media New York

About this chapter

Cite this chapter

Donath, C. et al. (2014). Health Services Utilization by Community-Dwelling Dementia Patients and Their Family Caregivers. In: Janssen, C., Swart, E., von Lengerke, T. (eds) Health Care Utilization in Germany. Springer, New York, NY. https://doi.org/10.1007/978-1-4614-9191-0_11

Download citation

  • DOI: https://doi.org/10.1007/978-1-4614-9191-0_11

  • Published:

  • Publisher Name: Springer, New York, NY

  • Print ISBN: 978-1-4614-9190-3

  • Online ISBN: 978-1-4614-9191-0

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics

Search

Navigation