Abstract
Scientific understanding of cancer as a physical and psychological challenge to those affected by it has progressed markedly in the last few decades. Medical advances have improved the prognosis for many cancers, allowing individuals to live longer with active advanced-stage disease. Individuals living with advanced cancer (AC) are receiving increased empirical attention, as this growing population faces adaptive challenges that are quite different from those of survivors of early-stage disease.
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References
Twombly, R. What's in a name: Who is a cancer survivor? J. Natl. Cancer Inst. 2004; 96: 1414–15.
American Cancer Society. All about Advanced Cancer. ACS: Atlanta, GA, 2005.
Schulz, R., Williamson, G.M., Knapp, J.E., Bookwala, J., Lave, J., and Fello, M. The psychological, social, and economic impact of illness among patients with recurrent cancer. J. Psychosoc. Oncol. 1995; 13: 21–45.
Ries, L.A.G., Eisner, M.P., Kosary, C.L., et al. (eds.). SEER Cancer Statistics Review, 1975–2002. National Cancer Institute: Bethesda, MD, 2005. Available at: http://seer.cancer.gov/csr/1975_2002/.Accessed November 29, 2005.
Osse, B., Vernooij-Dassen, M., Schade, E., de Vree, B., van den Muijsenbergh, M., and Grol, R. Problems to discuss with cancer patients in palliative care: A comprehensive approach. Patient Educ. Couns. 2002; 47: 195–204.
Cleeland, C.S., Gonin, R., Hatfield, A.K., and Edmonson, J.H. Pain and its treatment in outpatients with metastatic cancer. N. Engl. J. Med. 1994; 330: 592–6.
Lawrence, D.P., Kupelnick, B., Miller, K., Devine, D., and Lau, J. Evidence report on the occurrence, assessment, and treatment of fatigue in cancer patients. J. Natl. Cancer Inst. 2004; 32: 40–50.
McGuire, D.B. Occurrence of cancer pain. J. Natl. Cancer Inst. 2004; 32: 51–6.
Vig, E.K., and Pearlman, R.A. Quality of life while dying: A qualitative study of terminally ill older men. J. Am. Geriatr. Soc. 2003; 51: 1595–1601.
Morasso, G., Capelli, M., Viterbori, P., et al. Psychological and symptom distress in terminal cancer patients with met and unmet needs. J. Pain Symptom Manage. 1999; 17: 402–9.
Bowes, D.E., Tamlyn, D., and Butler, L.J. Women living with ovarian cancer: Dealing with an early death. Health Care Women Int. 2002; 23: 135–48.
Murray, S.A., Boyd, K., Kendall, M., Worth, A., Benton, T.F., and Clausen, H. Dying of lung cancer or cardiac failure: Prospective qualitative interview study of patients and their carers in the community. Br. Med. J. 2002; 325: 929–34.
Krakoff, I.H. Cessation of treatment in advanced cancer. Cancer 1991; 67: 1817–19.
Silvestri, G.A., Knittig, S., Zoller, J.S., and Nietert, P.J. Importance of faith on medical decisions regarding cancer care. J. Clin. Oncol. 2003; 21: 1379–82.
Voogt, E., Van der Heide, A., Van Leeuwen, A.F., et al. Positive and negative affect after diagnosis of advanced cancer. Psychooncology 2005; 14: 262–73.
Yellen, S.B., and Cella, D.F. Someone to live for: Social well-being, parenthood status, and decision-making in oncology. J. Clin. Oncol. 1995; 13: 1255–64.
Gattellari, M., Voigt, K.J., Butow, P.N., and Tattersall, M.H. When the treatment goal is not cure: Are cancer patients equipped to make informed decisions? J. Clin. Oncol. 2002; 20: 503–13.
Clark, J.A., Wray, N.P., and Ashton, C.M. Living with treatment decisions: Regrets and quality of life among men treated for metastatic prostate cancer. J. Clin. Oncol. 2001; 19: 72–80.
Lewis, F.M., Haberman, M.R., and Wallhagen, M.I. How adults with late-stage cancer experience personal control. J. Psychosoc. Oncol. 1986; 4: 27–42.
Clayton, J.M., Butow, P.N., Arnold, R.M., and Tattersall, M.H. Fostering coping and nurturing hope when discussing the future with terminally ill cancer patients and their caregivers. Cancer 2005; 103: 1965–75.
Chochinov, H.M., Hack, T., Hassard, T., Kristjanson, L.J., McClement, S., and Harlos, M. Understanding the will to live in patients nearing death. Psychosomatics 2005; 46: 7–10.
Cheville, A. Rehabilitation of patients with advanced cancer. Cancer 2001; 92: 1039–48.
Cuevas-Renaud, C., Sobrevilla-Calvo, P., and Almanza, J. Development of a scale to measure psychosocial concerns of Mexican women with advanced cancer. Psychooncology 2000; 9: 79–83.
Salander, P., and Spetz, A. How do patients and spouses deal with the serious facts of malignant glioma? Palliat. Med. 2002; 16: 305–13.
Clayton, J.M., Butow, P.N., and Tattersall, M.H. The needs of terminally ill cancer patients versus those of caregivers for information regarding prognosis and end-of-life issues. Cancer 2005; 103: 1957–64.
Hagerty, R.G., Butow, P.N., Ellis, P.M., et al. Communicating with realism and hope: Incurable cancer patients' views on the disclosure of prognosis. J. Clin. Oncol. 2005; 23: 1278–88.
Yun, Y.H., Lee, C.G., Kim, S.Y., et al. The attitudes of cancer patients and their families toward the disclosure of terminal illness. J. Clin. Oncol. 2004; 15: 307–14.
Miller, R.D., and Walsh, T.D. Psychosocial aspects of palliative care in advanced cancer. J. Pain Symptom Manage. 1991; 6: 24–29.
Hotopf, M., Chidgey, J., Addington-Hall, J., and Ly, K.L. Depression in advanced disease: A systematic review Part 1. Prevalence and case findings. Palliat. Med. 2002; 16: 81–97.
Grassi, L., Indelli, M., Marzola, M., and Maestri, A. Depressive symptoms and quality of life in home-assisted cancer patients. J. Pain Symptom Manage. 1996; 12: 300–7.
Hopwood, P., and Stephens, R.J. Depression in patients with lung cancer: Prevalence and risk factors derived from quality-of-life data. J. Clin. Oncol. 2000; 18: 893–903.
Kelsen, D.P., Portenoy, R.K., Thaler, H.T., et al. Pain and depression in patients with newly diagnosed pancreas cancer. J. Clin. Oncol. 1995; 13: 748–55.
Kissane, D.W., Grabsch, B., Love, A., Clarke, D.M., Bloch, S., and Smith, G. Psychiatric disorder in women with early stage and advanced breast cancer: A comparative analysis. Aust. N. Z. J. Psychiatry 2004; 38: 320–6.
Lloyd-Williams, M., Dennis, M., and Taylor, F. A prospective study to determine the association between physical symptoms and depression in patients with advanced cancer. Palliat. Med. 2004; 18: 558–63.
Love, A.W., Grabsch, B., Clarke, D.M., Bloch, S., and Kissane, D.W. Screening for depression in women with metastatic breast cancer: A comparison of the Beck Depression Inventory Short-Form and the Hospital Anxiety and Depression Scale. Aust. N. Z. J. Psychiatry 2004; 38: 526–31.
Chochinov, H.M., Wilson, K.G., Enns, M., and Lander, S. Prevalence of depression in the terminally ill: Effects of diagnostic criteria and symptom threshold judgments. Am. J. Psychiatry 1994; 151: 537–40.
Payne, S.A. A study of quality of life in cancer patients receiving palliative chemotherapy. Soc. Sci. Med. 1992; 35: 1505–9.
Butow, P.N., Coates, A.S., and Dunn, S.M. Psychosocial predictors of survival in metastatic melanoma. J. Clin. Oncol. 1999; 17: 2256–63.
Coates, A.S., Hurny, C., Peterson, H.F., et al. Quality of life scores predict outcome in metastatic but not early breast cancer. J. Clin. Oncol. 2000; 18: 3768–74.
Shadbolt, B., Barresi, J., and Craft, P. Self-rated health as a predictor of survival among patients with advanced cancer. J. Clin. Oncol. 2002; 20: 2514–19.
Neimeyer, R.A., and Mahoney, M.J. (eds.). Constructivism in Psychotherapy. American Psychological Association: Washington, DC, 1995.
Stanton, A.L., Bower, J.E., and Low, C.A. Posttraumatic growth after cancer. In: Calhoun, L.G., and Tedeschi, R.G. (eds.) Handbook of Posttraumatic Growth: Research and Practice. Erlbaum: Mahwah, NJ. 2006; 138–375.
Spiegel, D., Sands, S., and Koopman, C. Pain and depression in patients with cancer. Cancer 1994; 74: 2570–8.
Laubmeier, K.K., and Zakowski, S.G. The role of objective versus perceived life threat in the psychological adjustment to cancer. Psychol. Health 2004; 19: 425–37.
Chochinov, H.M., Tataryn, D.J., Wilson, K.G., Enns, M., and Lander, S. Prognostic awareness and the terminally ill. Psychosomatics 2000; 41: 500–4.
Miller, D.L., Manne, S.L., Taylor, K., Keates, J., and Dougherty, J. Psychological distress and well-being in advanced cancer: The effects of optimism and coping. J. Clin. Psychol. Med. Settings 1996; 3: 115–30.
Mor, V., Allen, S., and Malin, M. The psychosocial impact of cancer on older versus younger patients and their families. Cancer 1994; 74: 2118–27.
Wu, K.K. Family support, age, and emotional states of terminally ill cancer patients. Omega 1990; 22: 139–51.
Brown, J.E., Brown, R.F., Miller, R.M., et al. Coping with metastatic melanoma: The last year of life. Psychooncology 2000; 9: 283–92.
Mathews, H.F., Lannin, D.R., and Mitchell, J.P. Coming to terms with advanced breast cancer: Black women's narratives from Eastern North Carolina. Soc. Sci. Med. 1994; 38: 789–800.
Payne, R., Medina, E., and Hampton, J.W. Quality of life concerns in patients with breast cancer: Evidence for disparity of outcomes and experiences in pain management and palliative care among African-American women. Cancer 2003; 97: 311–17.
Koopman, C., Hermanson, K., Diamond, S., Angell, K., and Spiegel, D. Social support, life stress, pain and emotional adjustment to advanced breast cancer. Psychooncology 1998; 7: 101–11.
Giese-Davis, J., Hermanson, K., Koopman, C., Weibel, D., and Spiegel, D. Quality of couples' relationship and adjustment to metastatic breast cancer. J. Fam. Psychol. 2000; 14: 251–66.
Hinton, J. An assessment of open communication between people with terminal cancer, caring relatives, and others during home care. J. Palliat. Care. 1998; 14: 15–23.
Classen, C., Koopman, C., Angell, K., and Spiegel, D. Coping styles associated with psychological adjustment to advanced breast cancer. Health Psychol. 1996; 6: 434–7.
Weihs, K.L., Enright, T.M., Simmens, S.J., and Reiss, D. Negative affectivity, restriction of emotions, and site of metastases predict mortality in recurrent breast cancer. J. Psychosom. Res. 2000; 49: 59–68.
Giese-Davis, J., Sephton, S.E., Abercrombie, H.C., Duran, R.E.F., and Spiegel, D. Repression and high anxiety are associated with aberrant diurnal cortisol rhythms in women with metastatic breast cancer. Health Psychol. 2004; 23: 645–50.
Carver, C.S., Pozo, C., Harris, S.D., and Noriega, V. How coping mediates the effect of optimism on distress: A study of women with early stage breast cancer. J. Pers. Soc. Psychol. 1993; 65: 375–90.
Gotay, C.C., Isaacs, P., and Pagano, I. Quality of life in patients who survive a dire prognosis compared to control cancer survivors. Psychooncology 2004; 13: 882–92.
Sherliker, L., and Steptoe, A. Coping with new treatments for cancer: A feasibility study of daily diary measures. Patient Educ. Couns. 2000; 40: 11–19.
Steptoe, A., Sutcliffe, I., Allen, B., and Coombes, C. Satisfaction with communication, medical knowledge, and coping style in patients with metastatic cancer. Soc. Sci. Med. 1991; 32: 627–32.
Muldoon, M., and King, N. Spirituality, health care, & bioethics. J. Relig. Health 1995; 34: 329–49.
Breitbart, W., Rosenfeld, B., Pessin, H., et al. Depression, hopelessness, and desire for hastened death in terminally ill patients with cancer. JAMA 2000; 284: 2907–11.
Daugherty, C.K., Fitchett, G., Murphy, P.E., et al. Trusting god and medicine: Spirituality in advanced cancer patients volunteering for clinical trials of experimental agents. Psychooncology 2005; 14: 135–46.
McClain-Jacobson, C., Rosenfeld, B., Kosinski, A., et al. Belief in an afterlife, spiritual well-being and end-of-life despair in patients with advanced cancer. Gen. Hosp. Psychiatry 2004; 26: 484–6.
McClain, C.S., Rosenfeld, B., and Breitbart, W. Effect of spiritual well-being on end-of-life despair in terminally-ill cancer patients. Lancet 2003; 361: 1603–7.
Bordeleau, L., Szalai, J.P., Ennis, M., et al. Quality of life in a randomized trial of group psychosocial support in metastatic breast cancer: Overall effects of the intervention and an exploration of missing data. J. Clin. Oncol. 2003; 21: 1944–51.
Classen, C., Butler, L.D., Koopman, C., et al. Supportive-expressive group therapy and distress in patients with metastatic breast cancer: A randomized clinical intervention trial. Arch. Gen. Psychiatry 2001; 58: 494–501.
Goodwin, P.J., Leszcz, M., Ennis, M., et al. The effect of group psychosocial support on survival in metastatic breast cancer. N. Engl. J. Med. 2001; 345: 1719–26.
Spiegel, D., Bloom, J.R., Kraemer, H.C., and Gottheil, E. Effect of psychosocial treatment on survival of patients with metastatic breast cancer. Lancet 1989; 2: 888–91.
Cunningham, A.J., Edmons, C.V.I., Jenkins, G.P., Pollack, H., Lockwood, G.A., and Warr, D. A randomized controlled trial of the effects of group psychological therapy on survival in women with metastatic breast cancer. Psychooncology 1998; 7: 508–17.
Edelman, S., Bell, D.R., and Kidman, A.D. A group cognitive behaviour therapy programme with metastatic breast cancer patients. Psychooncology 1999; 8: 295–305.
Edelman, S., Lemon, J., Bell, D.R., and Kidman, A.D. Effects of group CBT on the survival time of patients with metastatic breast cancer. Psychooncology 1999; 8: 474–81.
deMoor, C., Sterner, J., Hall, M., et al. A pilot study of the effects of expressive writing on psychological and behavioral adjustment in patients enrolled in a Phase II trial of vaccine therapy for metastatic renal cell carcinoma. Health Psychol. 2002; 21: 615–19.
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Low, C.A., Beran, T., Stanton, A.L. (2007). Adaptation in the Face of Advanced Cancer. In: Feuerstein, M. (eds) Handbook of Cancer Survivorship. Springer, Boston, MA. https://doi.org/10.1007/978-0-387-34562-8_12
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DOI: https://doi.org/10.1007/978-0-387-34562-8_12
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