Journal of the American Medical Directors Association
Original StudyPerspectives on Parkinson Disease Care in Dutch Nursing Homes
Section snippets
Methods
Experiences and unmet needs were explored in 2 ways: (1) interviewing residents and informal caregivers and (2) focus group discussions with health care workers.
Results
Fifteen residents and 15 (unrelated) informal caregivers were included for an interview. Five focus group discussions were organized with 35 participants in total: 2 focus groups with nurses (13 participants) and 3 focus groups with nursing home professionals (22 participants). Characteristics of the participants are displayed in Table 1.
Discussion
This study revealed the following unmet needs for PD care in nursing homes from the perspective of residents, caregivers, and health care workers:
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Unsatisfactory emotional support and empathy for residents and caregivers
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Insufficient staff knowledge on PD-related issues
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Limited cooperation with PD specialists and PD nurses
The next question to be answered is: what can be done to improve PD care in nursing homes? In this section, we give several recommendations based on the 3 major unmet needs found
Acknowledgments
The authors thank all those who contributed to the conduct of this study, especially the investigators Ch. Emonts, A. de Klein, B. van Lange, and L. de Roo, who took part in data collection and data analysis, and the Prinses Beatrix Fonds as the funding source. The Prinses Beatrix Fonds took no part in the content of this article or the conduct of the study.
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This study was funded by the Prinses Beatrix Fonds.
The authors declare no conflicts of interest.