Skip to main content

Advertisement

Log in

Unintended consequences: the social context of cancer survivors and work

  • Published:
Journal of Cancer Survivorship Aims and scope Submit manuscript

Abstract

Purpose

This article describes the ways in which socioeconomic characteristics and workplace contexts shape the unintended consequences that cancer survivors can experience as they return to work. The study was conducted in an employment setting where there is a major focus on productivity and economic growth in the business sector.

Methods

Five focus groups (N = 33 participants) were conducted in 2012 in Singapore. Questions were directed at obtaining information related to the meaning of a job and reactions to return to work as a cancer survivor completes primary cancer treatment. A thematic analysis using a two-staged analytical process was conducted to identify (1) work-related challenges faced by survivors as a result of the interplay between their self-identity as someone with a critical illness and organizational structure, and (2) unintended social consequences (USCs) related to the interaction between the workplace and cancer survivor.

Results

Eight emerging themes of work-related challenges and unintended consequences were categorized. Fear of losing out by compromising one’s expectation, downplaying illness to avoid being a burden to others, working harder to meet expectations, and passive acceptance to perceived discrimination. Unintended consequences were also observed in relation to policies, procedures, and economic factors in the context of a heightened economically driven social climate.

Conclusions

This study contributes to the understanding of how cancer survivors perceive their work situation. These findings can inform health care providers, employers, and policy makers regarding the challenges faced by cancer survivors as they return to the workplace in a culture of a rapidly growing emphasis on economic concerns.

Implications for Cancer Survivorship

These findings offer a new perspective on the complexities that can occur when cancer survivors interact with their workplace. Awareness of the existence and types of unintended consequences in this context can help provide a more comprehensive understanding of the cancer survivor and work interface.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Similar content being viewed by others

References

  1. Spelten ER, Sprangers MA, Verbeek JH. Factors reported to influence the return to work of cancer survivors: a literature review. Psychooncology. 2002;11:124–31.

    Article  PubMed  Google Scholar 

  2. Kennedy F, Haslam C, Munir F, Pryce J. Returning to work following cancer: a qualitative exploratory study into the experience of returning to work following cancer. Eur J Cancer Care. 2007;16:17–25.

    Article  CAS  Google Scholar 

  3. Carlsson M, Hamrin E, Lindqvist R. Psychometric assessment of the life satisfaction questionnaire (LSQ) and a comparison of randomized sample of Swedish women and those suffering from breast cancer. Qual Life Res. 1999;8(3):245–53.

    Article  CAS  PubMed  Google Scholar 

  4. Pryce J, Munir F, Haslam C. Cancer survivorship and work: symptoms, supervisor response, co-worker disclosure, and work adjustment. J Occup Rehabil. 2007;17:83–92.

    Article  PubMed  Google Scholar 

  5. Feuerstein M, Tood B, Moskowitz M, et al. Work in cancer survivors: a model for practice and research. J Cancer Surviv. 2010;4:415–37.

    Article  PubMed  Google Scholar 

  6. Mehnert A. Employment and work-related issues in cancer survivors. Crit Rev Oncol Hematol. 2011;77:109–30.

    Article  PubMed  Google Scholar 

  7. Mehnert A, de Boer A, Feuerstein, M. Employment challenges for cancer survivors. Cancer. (2013, in press).

  8. Giddens A. Central problems in social theory: action, structure, and contradiction in social analysis. Los Angeles: University of California Press; 1979.

    Book  Google Scholar 

  9. Giddens A. The constitution of society: outline of the theory of structuration. Los Angeles: University of California Press; 1984.

    Google Scholar 

  10. Koehn D. Living with the dragon: thinking and acting ethically in a world of unintended consequences. New York: Routledge; 2010.

    Google Scholar 

  11. Wells M, Williams B, Firnigl D, Lang H, Coyle J, Kroll T, et al. Supporting ‘work-related goals’ rather than ‘return to work’ after cancer? A systematic review and meta-synthesis of 25 qualitative studies. Psychooncology. 2012. doi:10.1002/pon.3148.

    PubMed Central  Google Scholar 

  12. Amir Z, Neary D, Luker K. Cancer survivors’ views of work 3 years post diagnosis: a UK perspective. Eur J Oncol Nurs. 2008;12:190–7.

    Article  PubMed  Google Scholar 

  13. Boykoff N, Moieni M, Subramanian SK. Confronting chemobrain: an in-depth look at survivors’ reports of impact on work, social networks, and health care response. J Cancer Surviv. 2009;3:223–32.

    Article  PubMed Central  PubMed  Google Scholar 

  14. Maunsell E, Brisson C, Dubois L, Lauzier S, Fraser A. Work problems after breast cancer: an exploratory qualitative study. Psychooncology. 1999;8(6):467–73.

    Article  CAS  PubMed  Google Scholar 

  15. Spector R. Culture and diversity in health and illness. Stamford: Appleton Lange; 1996.

    Google Scholar 

  16. Galanti G. Caring for patients from different cultures: case studies from American hospitals. Philadelphia: University of Pennsylvania Press; 1991.

    Google Scholar 

  17. Wright KB, Sparks L, O’Hair HD. Health communication in the 21st century. Malden: Blackwell Publishing; 2008.

    Google Scholar 

  18. Hofstede G. Cultures and organizations: software of the mind. New York: McGraw-Hill; 2004.

    Google Scholar 

  19. Kluckhohn FR, Strodtbeck FL. Variations in value orientations. Evanston: Row, Peterson; 1961.

    Google Scholar 

  20. Ho KL. Citizen participation and policy making in Singapore: conditions and predicaments. Asian Surv. 2000;40(3):436–55.

    Article  Google Scholar 

  21. Ting GS, Yen JL. Patient advocacy and its role in Singapore. Ethics Healthc SGH Proc. 2008;17(1):3–8.

    Google Scholar 

  22. Mak AKY. Toward an occupational rehabilitation policy community for cancer survivors in Singapore: a stakeholder perspective from the SME employers. J Occup Rehabil. 2011;21:77–85.

    Article  Google Scholar 

  23. Chen HMK, Tan WH, Tan WC, Yu CKE, Lim THJ, Tay MH, et al. Attitudes towards cancer survivors: a small survey. Singapore Med J. 2006;47(2):143–6.

    CAS  PubMed  Google Scholar 

  24. Marshall C, Rossman GB. Designing qualitative research. 3rd ed. Thousand Oaks: Sage; 1999.

    Google Scholar 

  25. Lindlof TR. Qualitative communication research methods. Thousand Oaks: Sage; 1995.

    Google Scholar 

  26. Whaley BB. Explaining illness: research, theory, and strategies. Mahwah: Lawrence Erlbaum Associates, Inc; 2000.

    Google Scholar 

  27. Mystakidou K, Parpa E, Tsilika E, Katsouda E, Vlahos L. Cancer information disclosure in different cultural context. Support Care Cancer. 2004;12:147–54.

    Article  PubMed  Google Scholar 

  28. Green J, Thorogood N. Qualitative methods for health research. London: Sage; 2004.

    Google Scholar 

  29. McKay G, Knott V, Delfabbro P. Return to work and cancer: the Australian experience. J Occup Rehabil. 2013;23:93–105.

    Article  PubMed  Google Scholar 

  30. Kim JY, Nam SH. The concept and dynamics of face: implications for organizational behavior in Asia. Organ Sci. 1998;9(4):522–34.

    Article  Google Scholar 

  31. Goldsmith DJ. Communicating social support. Cambridge: Cambridge University Press; 2004.

    Book  Google Scholar 

  32. National Coalition for Cancer Survivorship. Self-advocacy: a cancer survivor’s handbook. MD: Silver Spring; 2009.

    Google Scholar 

  33. Coreil J, Wilke J, Pintado I. Cultural models of illness and recovery in breast cancer support groups. Qual Health Res. 2004;14(7):905–23.

    Article  PubMed  Google Scholar 

  34. Carlson LE, Halifax J. Mindfulness for cancer and terminal illness. In: McCracken LM, editor. Mindfulness and acceptance in behavioral medicine: current theory and practice. Oakland: New Harbinger; 2011. p. 159–86.

  35. Carver CS. Resilience and thriving: issues, models, and linkages. J Soc Issues. 1998;54(2):245–63.

    Article  Google Scholar 

  36. Parent JD, Levitt K. Manager versus employee perceptions of adaptability and work performance. Bus Renaiss Q. 2009;4(4):23–48.

    Google Scholar 

  37. Frazier LM, Miller VA, Horbelt DV, Delmore JE, Miller BE, Paschal AM. Comparison of focus groups on cancer and employment conducted face to face or by telephone. Qual Health Res. 2010;20(5):617–27.

    Article  PubMed Central  PubMed  Google Scholar 

  38. Singapore Ministry of Manpower [database on the Internet]. Singapore Yearbook of Manpower Statistics, 2012; 2012 [cited 17 Jun 2013]. Available from: http://www.mom.gov.sg/Documents/statistics-publications/yearbook12/mrsd_2012YearBook.pdf.

Download references

Acknowledgments

We thank Fariza Salleh, Salfarizah Saleh, Jenna Teo, and Brandon Goh for their invaluable contributions to the study.

Conflict of interest

The authors declared no conflicts of interest with respect to the authorship and/or publication of this article.

Funding

This work was supported by a Singapore Cancer Society Grant 2011 to Dr Mak.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Angela Ka Ying Mak.

Rights and permissions

Reprints and permissions

About this article

Cite this article

Mak, A.K.Y., Chaidaroon, S., Fan, G. et al. Unintended consequences: the social context of cancer survivors and work. J Cancer Surviv 8, 269–281 (2014). https://doi.org/10.1007/s11764-013-0330-6

Download citation

  • Received:

  • Accepted:

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s11764-013-0330-6

Keywords

Navigation