Weitere Artikel dieser Ausgabe durch Wischen aufrufen
The online version of this article (doi:10.1007/s00391-017-1266-7) contains supplementary material, which is available to authorized users.
People with dementia and their informal carers often do not receive appropriate professional support or it is not received at the right time.
Description and comparison of common pathways to formal community dementia care in eight European countries as a part of the transnational Actifcare project.
The German team was responsible for creating an individual case scenario as a starting point. The research teams in Ireland, Italy, the Netherlands, Norway, Portugal, Sweden, and the United Kingdom were then asked to describe a common pathway to formal dementia care by writing their own vignette using the provided individual case scenario.
A transnational qualitative content analysis was used to identify the following categories as being the most important: involved professionals, dementia-specific and team-based approaches, proactive roles, and financial aspects. General practitioners (GPs) are described as being the most important profession supporting the access to formal care in all the involved countries. In some countries other professionals take over responsibility for the access procedure. Dementia-specific approaches are rarely part of standard care; team-based approaches have differing significances in each of the countries. Informal carers are mainly proactive in seeking formal care. The Nordic countries demonstrate how financial support enhances access to the professional system.
Enhanced cooperation between GPs and other professions might optimize access to formal dementia care. Team-based approaches focusing on dementia care should be developed further. Informal carers should be supported and relieved in their role. Financial barriers remain which should be further investigated and reduced.
Bitte loggen Sie sich ein, um Zugang zu diesem Inhalt zu erhalten
Sie möchten Zugang zu diesem Inhalt erhalten? Dann informieren Sie sich jetzt über unsere Produkte:
Supplementary Material 1 presents information on the described structures and components related to access to formal care and an excerpt of the described structures. Supplementary Material 2 comprises the introduction to the case scenario as the starting point for national common pathways to formal dementia care.391_2017_1266_MOESM2_ESM.docx
Alexander CS, Becker HJ (1978) The use of vignettes in survey research. Public Opin Qart 42(1):93–104 CrossRef
Alzheimer Europe (2006) Who cares? The state of dementia care in Europe. http://www.alzheimer-europe.org/Publications/Alzheimer-Europe-Reports. Accessed 27 Mar 2017
Andersen RM, Newman JF (2005) Societal and individual determinants of medical care utilization in the United States. Milbank Q 83(4):1–28 CrossRef
Kerpershoek L, de Vugt M, Wolfs C, Jelley H, Orrel M, Woods B, Stephan A, Bieber A, Meyer G, Engedal K, Selbaek G, Handels R, Wimo A, Hopper L, Irving K, Marques M, Gonçalves-Pereira M, Portolani E, Zanetti O, Verhey F, Actifcare Consortium (2016) Access to timely formal dementia care in Europe: protocol of the Acticare (ACess to Timely Formal Care) study. BMC Health Serv Res 16(1):423 CrossRefPubMedPubMedCentral
KPMG (2011) Dementia Services pathways – an essential guide to effective service planning. http://www.wimmerapcp.org.au/wp-gidbox/uploads/2014/04/KPMG-2011-Dementia-Services-Pathways.pdf. Accessed 27 Mar 2017
Mayring P (2014) Qualitative Content Analysis: theoretical foundation, basic procedures and software solutions. Beltz, Klagenfurt
Reilly S, Miranda-Castillo C, Malouf R, Hoe J, Toot S, Challis D, Orrell M (2015) Case management approaches to home support for people with dementia. Cochrane Database Syst Rev(1):CD008345. doi: 10.1002/14651858.CD008345.pub2
Rimmer E, Wojciechowska M, Sgana A, O’Connell B (2005) Implications of The Facing Dementia Survey for the general population, patients and caregivers across Europe. International J Clin Pract 59(146):17–24 CrossRef
Saks K, Tiit EM, Verbeek H, Raamal K, Armolik A, Leibur J, Meyer G, Zabalegui A, Leino-Kilpi H, Karlsson S, Soto M, Tuckler S (2015) Most appropriate placement for people with dementia: individual experts vs. expert groups’ decisions in eight European countries. J Adv Nur 71(6):1363–1377 CrossRef
Thyrian JR, Hoffmann W (2012) Dementia care and general physicians – a survey on prevalence, means, attitudes and recommendations. Cent Eur J Public Health 20(4):270–275 PubMed
Thyrian JR, Eichler T, Pooch A, Albuerne K, Dreier A, Michalowsky B, Wucherer D, Hoffmann W (2016) Systematic, early identification of dementia and dementia care management are highly appreciated by general physicians in primary care – results within a cluster-randomized-controlled trial (DelpHi). J Multidiscip Healthc 19(9):183–190 CrossRef
Access to community care for people with dementia and their informal carers
Case vignettes for a European comparison of structures and common pathways to formal care
M. de Vugt
R. T. Woods
B. M. Sjölund
M. J. Marques
Prof. Dr. G. Meyer
- Springer Medizin