Abstract
In contemporary liberal ethics patient autonomy is often interpreted as the right to self-determination: when it comes to treatment decisions, the patient is given the right to give or withhold informed consent. This paper joins in the philosophical and ethical criticism of the liberal interpretation as it does not regard patient autonomy as a right, rule or principle, but rather as a practice. Patient autonomy, or so I will argue, is realised in the concrete activities of day-to-day health care, in the material and technological context of care, in arrangements of health care institutions, in the physical training of people with disabilities, as well as in the concrete activities of care-giving. This move from conversations in the consultation room to other sites and situations in the practice of care takes seriously the empirical reality of medical care and intends to show that patient autonomy is practically realised in a much richer and more creative way than most ethical theory seems to assume.
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References
G.J. Agich (1993) Autonomy and Long-term Care Oxford University Press New York
Albrecht, G.L., K.D. Seelman and M. Bury (eds.): 2001, Handbook of Disability Studies. Thousand Oaks.
A. Baier (1994) Moral Prejudices: Essays on Ethics Harvard University Press Cambridge
T.L. Beauchamp J.F. Childress (1979) Principles of Biomedical Ethics Oxford University Press New York
M. Callon J. Law (1997) ArticleTitle‘After the Individual in Society: Lessons on Collectivity from Science, Technology and Society.’ Canadian Journal of Sociology 22 165–182
E. Conradi N. Biller-Andorno M. Boos C. Sommer C. Wiesemann (2003) ArticleTitle‘Gender in Medical Ethics: Re-examining the Conceptual Basis of Empirical Research’ Medicine, Health Care and Philosophy 6 51–58
J. Dahl Rendtorff (2002) ArticleTitle‘Basic Ethical Principles in European Bioethics and Biolaw: Autonomy, Dignity, Integrity and Vulnerability–Towards a Foundation of bioethics and biolaw’ Medicine, Health Care and Philosophy 5 235–244
De Beaufort, I.D. and H.M. Dupuis (eds.): 1988, Handboek gezondheidsethiek. Assen.
A. Donchin (1995) ArticleTitle‘Reworking Autonomy: Toward a Feminist Perspective’ Cambridge Quarterly of Healthcare Ethics 4 44–55 Occurrence Handle7627365
H.M. Dupuis I.D. Beaufort ParticleDe E. Does ParticleVan der M.T. Hilhorst B. Themans J.G.M. Aartsen (1994) Wat zou u doen? Medisch-ethische casuïstiete met commentaren (What Would You Do? Cases from Medical Ethics with Comments) Bohn, Stafleu & Van Loghum Houten
G. Dworkin (1988) The Theory and Practice of Autonomy Cambridge University Press Cambridge, Mass.
R.R. Faden T.L. Beauchamp (1986) A History and Theory of Informed Consent Oxford University Press New York
E. Gomart A. Hennion (1999) A Sociology of Attachment: Music Amateurs, Drug Users J. Law J. Hassard (Eds) Actor Network Theory and After Blackwell Publishers Oxford 220–247
H. Harbers A. Mol A. Stollmeyer (2002) ArticleTitle‘Food Matters: Arguments for an Ethnography of Daily Care’, Theory Culture and Society 19 207–226 Occurrence Handle10.1177/026327602761899228
J. Keller (1997) ArticleTitle‘Autonomy, Relationality, and Feminist Ethics’ Hypatia 12 152–164
A. Lelie (1999) Ethiek en nefrologie: Een empirisch-ethisch onderzoek (Ethics and Nephrology: An Inquiry from Empirical Ethics) Damon Leende
A. MacIntyre (1981) After Virtue University of Notre Dame Press Notre Dame, Indiana
Manschot, H.A.M.: 1994, ‘Kwetsbare autonomie? Over afhankelijkheid en onafhankelijkheid in de ethiek van de zorg’, in: H.A.M. Manschot and M. Verkerk (eds.). Amsterdam: Boom, pp. 97–118.
A. Mol J. Mesman (1996) ArticleTitle‘Neonatal Food and the Politics of Theory: Some Questions on Method’ Social Studies of Science 26 419–444
I. Moser J. Law (1999) Good Passages, Bad Passages J. Law J. Hassard (Eds) Actor Network Theory and After Blackwell Publishers Oxford 196–219
M.A.C.J. Potting (2001) Van je familie. . : Zorg, familie en sekse in de mantelzorg (Care, Family and Gender in Volunteer Aid) Aksant Amsterdam
M. Schermer (2002) The Different Faces of Autonomy: Patient Autonomy in Ethical Theory and Hospital Practice Kluwer Academic Publishers Dordrecht
M.-J.E.H. Smits (2004) Zorgen voor een draaglijk bestaan: Morele ervaringen van verpleegkundigen (Moral Experiences of Nurses) Aksant Amsterdam
T.E. Swierstra (2002) ArticleTitle‘Ethiek op zijn plaats zetten: Normatieve ethiek als empirische filosofie (Ethics in its Place: Normative Ethics as Empirical Philosophy)’ Krisis: Tijdschrift voor empirische filosofie 3 18–38
H.A.M.J. Ten Have (1998) ArticleTitle‘Editorial: Philosophy of Medicine and Health Care - European Perspectives’ Medicine, Health Care and Philosophy 1 1–3
J.C. Tronto (1993) Moral Boundaries: A Political Argument for an Ethic of Care Routledge New York
M.A. Verkerk (2001) ArticleTitle‘The Care Perspective and Autonomy’ Medicine, Health Care and Philosophy 4 289–294
G.A.M. Widdershoven (2000) Ethiek in de kliniek: Hedendaagse benaderingen in de gezondheidsethiek (Ethics in the Clinic: Contemporary Approaches in Health Care Ethics) Boom Amsterdam
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Struhkamp, R.M. Patient autonomy: A view from the kitchen. Med Health Care Philos 8, 105–114 (2005). https://doi.org/10.1007/s11019-004-1134-2
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DOI: https://doi.org/10.1007/s11019-004-1134-2